Any pointers with regards to databases where I can find publicly available anonymous electronic health records ? I need it for an internal research project.
Thanks!
-Abhi
I have evaluated a bunch of open access electronic medical record (EMR) / electronic health record (EHR) platforms for a project. OpenMRS have a pre-populated database of patients that could be an ideal fit for your purpose.
You can download:
A sample anonymized data set, including 5,000 patients and 500,000 observations, is available to download for current OpenMRS versions and import into your existing database.
I am not aware of a database containing electronic health records that is also publicly accessible. I am curious to see if anyone else knows of one.
Depending on what kind of information you hope to use and what country you are operating in, I suspect that it may only exist in simulated form. In places like the US, medical records are protected for privacy and liability reasons (all of the following applies to the US, but Canada, EU countries, and others have similar setups):
privacyrights.org has a useful fact sheet on medical records privacy. Health records generally contain protected health information (PHI), including things like names, any kind of date or age at all, various commonly used identifiers, etc. These types of information are highly protected and their use and distribution is subject to many regulations. The electronic versions are even more protected than those on paper. Organizations that have access to electronics health records (hospitals, insurance companies, contractors, sub-contractors, etc.) are generally concerned with compliance to:
The strict limitations imposed by HIPAA were further enhanced by the HHS in the form of the final Ominibus rule (full PDF).
Some of the largest breaches reported to HHS have involved business associates. Penalties are increased for noncompliance based on the level of negligence with a maximum penalty of $1.5 million per violation.
Furthermore, an organization found to have violated HIPAA, can in certain circumstances be required to advertise their own breach (at their own expense) in the form of TV spots, radio announcements, etc.
You can imagine that given all of that, any organization that does have electronic medical records might be nervous about making them publicly available. It should be possible though if you anonymize and carefully remove all PHI.
EMRbots.org was created to allow users to experiment with simulated EMR.
Here is some sample data I have been using as a sample set for testing with hadoop. It's interesting and comes with a fairly well-defined data definition.
Please help me get the data too. I want to use it to help pharmacy students in a college class that explains the behind the scenes of medical databases. The hands-on labs will include basic SQL, table structures, and entity relationships. Having a set of plausible data will help immensely. Thanks in advance!
You can get some real-world data by applying as a researcher for https://researchallofus.org/. I came to this question looking for something similar that's open source.
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Thanks for the info.
it's a shame that the bigger players like Cerner are seeing the sharing of information in these areas as an opportunity to make money instead of an opportunity to advance the field of informatics
The link for 100 patient database is not working
I need the dataset of admission notes too.
About 1000 documents.
Do you have ?
or Does the button"database" contain it ?